Our boy Brooklyn was born on the 28th of July 2017.
When he was 10 days old he was diagnosed with NonKetotic HyperGlycinemia. This is a terminal diagnosis with a long term outlook of a profound disability. At 9 months we were given a new diagnosis of Early Infantile Epileptic Encephalopathy which carries with it many of the same outlooks at NKH.
These are our thoughts as we begin to process and live with this prognosis.
We love our boy, Brooklyn.